{"id":226,"date":"2025-04-16T17:39:38","date_gmt":"2025-04-16T17:39:38","guid":{"rendered":"https:\/\/davialilly.com\/?page_id=226"},"modified":"2025-08-19T01:06:11","modified_gmt":"2025-08-19T01:06:11","slug":"case-study-global-genes","status":"publish","type":"page","link":"https:\/\/davialilly.com\/?page_id=226","title":{"rendered":"Global Genes"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Header&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; background_image=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/04\/back1a-1.png&#8221; locked=&#8221;off&#8221; collapsed=&#8221;on&#8221; global_colors_info=&#8221;{%22gcid-a674551e-c023-4666-82b8-b7448e713885%22:%91%22background_color%22%93}&#8221;][et_pb_row _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;none&#8221; custom_padding=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;PORTFOLIO &#8221; url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjgxIn19@&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;url&#8221; _module_preset=&#8221;2f1d5852-f57b-4ba0-bd16-6c9a4ad15057&#8243; title_text_align=&#8221;center&#8221; title_text_color=&#8221;RGBA(255,255,255,0.7)&#8221; custom_padding=&#8221;||0px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;none&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Global Genes&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;53832b88-c00f-488b-926c-9b4bffdc92b5&#8243; title_text_align=&#8221;center&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font_size=&#8221;4vw&#8221; width=&#8221;100%&#8221; custom_margin=&#8221;||10px||false|false&#8221; title_font_size_tablet=&#8221;8vw&#8221; title_font_size_phone=&#8221;8vw&#8221; title_font_size_last_edited=&#8221;off|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_divider color=&#8221;#FFFFFF&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;29%&#8221; module_alignment=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_divider][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Jost||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; text_font_size=&#8221;18px&#8221; custom_margin=&#8221;-38px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\">lobal Genes, a nonprofit dedicated to individuals and families affected by rare diseases, needed to modernize their digital platform to better serve a global, often underserved, community. The project aimed to improve discovery of events, resources, and connections between users with shared conditions or interests\u2014powered by user-centered design and machine learning<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;100%&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;|0px||0px|false|false&#8221; custom_padding=&#8221;|0px|||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_header title=&#8221;Project Overview&#8221; text_orientation=&#8221;center&#8221; header_scroll_down=&#8221;on&#8221; scroll_down_icon=&#8221;%%3%%&#8221; scroll_down_icon_size=&#8221;32px&#8221; content_max_width=&#8221;99%&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_line_height=&#8221;1.6em&#8221; content_font_size=&#8221;20px&#8221; content_line_height=&#8221;1.9em&#8221; background_color=&#8221;#48a31b&#8221; width=&#8221;100%&#8221; custom_margin=&#8221;0px|0px||0px|false|false&#8221; custom_padding=&#8221;0px|0px||0px|false|false&#8221; box_shadow_style=&#8221;preset6&#8243; global_colors_info=&#8221;{}&#8221;]<strong>Project:<\/strong> Global Genes Website Redesign &amp; Smart Event Matching<br \/>\n<strong>Role:<\/strong> Senior Product Designer \/ UX Lead<br \/>\n<strong>Team:<\/strong> UX, engineering, content strategy, data science,<br \/>\ncommunity engagement, executive stakeholders<br \/>\n<strong>Timeline:<\/strong> June 2022 \u2013 February 2023<br \/>\n[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||11px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;60px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Problem &#038; Context&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;fa7df620-1221-4058-9181-68f8eeae9e5b&#8221; title_font=&#8221;Jost|600|||||||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_heading title=&#8221;Global Genes Website Redesign &#038; Smart Event Matching&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;313e2ec7-60b4-4c07-9ef7-ac3ea5256c13&#8243; title_font=&#8221;Jost|600|||||||&#8221; title_font_size=&#8221;53px&#8221; title_letter_spacing=&#8221;0em&#8221; title_line_height=&#8221;1.2em&#8221; width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;cb9d74ce-fa96-4442-99e6-35dfe6e4ee62&#8243; text_font=&#8221;Jost||||||||&#8221; global_colors_info=&#8221;{}&#8221;]Global Genes serves millions of people impacted by over 10,000 rare diseases, many of whom are navigating complex medical and emotional journeys without clear support systems. Despite the organization&#8217;s powerful mission and extensive content library, their website had become difficult to navigate, fragmented, and unintentionally inaccessible.<br \/>\n[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.troutman.com\/&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;View Live Project&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;2ee4c248-4b73-4b58-911a-0be184fd3e74&#8243; button_font=&#8221;Jost|600|||||||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/04\/globalgenes-scaled.png&#8221; title_text=&#8221;globalgenes&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||4px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Problem&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Global Genes had a vast ecosystem of valuable resources, but their digital experience was falling short for the very people who needed it most. Users\u2014including patients, caregivers, researchers, and advocates\u2014struggled to find relevant content, connect with peers, or engage meaningfully with the community. The platform lacked personalization, accessibility, and a clear structure, leading to lost opportunities for support, education, and engagement. Technical debt, fragmented navigation, and outdated infrastructure further limited its reach\u2014especially on a global scale.[\/et_pb_text][et_pb_heading title=&#8221;Solution&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]We reimagined the Global Genes website as a centralized, scalable platform that could meet the rare disease community\u2019s diverse needs\u2014whether emotional, informational, or technical. Our team:<\/p>\n<ul>\n<li>Redesigned the site architecture and navigation for clarity, flexibility, and accessibility<\/li>\n<li>Implemented machine learning to personalize event and resource recommendations<\/li>\n<li>Integrated the Data DIY training series to empower patients and advocates as data stewards<\/li>\n<li>Built a responsive, mobile-first design that served users across devices and abilities<\/li>\n<li>Enabled researcher access to the Rare Data Exchange, surfacing community-contributed insights<\/li>\n<li>Created an easy-to-manage backend and trained the Global Genes team for long-term autonomy<\/li>\n<li>Unified voice, tone, and visuals across all touchpoints to reinforce Global Genes\u2019 mission<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Impact&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<strong>Improved User Engagement and Experience<\/strong><br \/>\nRedesigned site architecture, navigation, and content access led to faster discovery of resources and a smoother user journey\u2014especially for users navigating complex or rare disease-related challenges.<\/p>\n<p><strong>Greater Community Connection<\/strong><br \/>\nML-powered recommendations helped users find relevant events, toolkits, and peers, increasing participation in support initiatives and rare disease events.<\/p>\n<p><strong>Empowered Research Access<\/strong><br \/>\nResearchers gained improved access to the Rare Data Exchange, enabling better use of patient-contributed data and advancing condition-specific insights.<\/p>\n<p><strong>Expanded Global Reach<\/strong><br \/>\nThe platform\u2019s new architecture supported multilingual access and localization, making Global Genes\u2019 content and tools more accessible to international audiences.<\/p>\n<p><strong>Increased Digital Metrics<\/strong><br \/>\nPost-launch saw measurable lifts in:<\/p>\n<ul>\n<li>Website traffic: \u2191\u202f23% increase in unique visits within 6 months<\/li>\n<li>Toolkit downloads: \u2191\u202f2.3\u00d7 boost in downloads of condition-specific toolkits<\/li>\n<li>Speaking engagement sign-ups: \u2191\u202f28% increase in registrations following event recommendations<\/li>\n<li>Social media followers: \u2191\u202f12% growth across platforms (primarily Facebook + Instagram)<\/li>\n<li>Email newsletter subscriptions: \u2191\u202f35% increase in opt-ins due to redesigned signup flows and resource CTAs<\/li>\n<\/ul>\n<p><strong>Stronger Brand Identity<\/strong><br \/>\nThe redesign brought clarity and cohesion to Global Genes\u2019 brand, ensuring consistency across web, email, and social\u2014leading to deeper user trust and broader awareness.<\/p>\n<p><strong>Sustainable Site Management<\/strong><br \/>\nThe backend was built for long-term scalability. The Global Genes team now has full autonomy over content updates, supported by custom CMS training provided at launch.<br \/>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Research &#038; Insights&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_heading title=&#8221;Persona &#038; Journey Mapping&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Worked closely with Global Genes to identify and define core audiences: newly diagnosed patients, caregivers, advocates, researchers, and global partners. Mapped user journeys to understand needs across emotional, informational, and technical touchpoints.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;Content &#038; Tech Ecosystem Audit&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Reviewed existing content repositories, CMS architecture, and third-party tools. Conducted a full <strong data-start=\"688\" data-end=\"712\">content gap analysis<\/strong> and mapped critical resources to user goals. Audited the technology stack to uncover inefficiencies and inform a scalable rebuild.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;Accessibility &#038; Navigation Analysis&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Evaluated the previous site\u2019s structure and user experience\u2014surfaced pain points around <strong data-start=\"978\" data-end=\"1023\">accessibility, searchability, and clarity<\/strong>. Discovered that scattered, untagged resources often led to missed opportunities for connection or support.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;SEO &#038; Analytics Review&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Audited site analytics and marketing tech performance. Developed a revised <strong data-start=\"1240\" data-end=\"1272\">channel and content strategy<\/strong>\u2014including SEO enhancements and messaging refresh across web, email, and social.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;Data Strategy Integration&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Collaborated with developers and data teams to architect a backend that would support up-to-date rare disease data integration, ensuring users had access to evolving, condition-specific resources.<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Pain Points &#038; Context&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||10px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|300|||||||&#8221; header_2_text_align=&#8221;left&#8221; header_2_line_height=&#8221;1.4em&#8221; custom_margin=&#8221;||15px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Global Genes is a nonprofit that supports over 400 million people worldwide living with rare diseases. Despite its mission and resource-rich platform, the organization\u2019s previous website wasn\u2019t meeting the needs of its community.<\/h2>\n<p>[\/et_pb_text][et_pb_heading title=&#8221;Users\u2014often newly diagnosed patients, caregivers, or advocates\u2014faced challenges such as:&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_line_height=&#8221;1.2em&#8221; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||8px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Disconnected, hard-to-navigate content<\/li>\n<li>Limited ways to discover relevant resources, events, or support communities<\/li>\n<li>Accessibility barriers for low-tech or global users<\/li>\n<li>Outdated backend tools that made content updates and maintenance difficult<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_heading title=&#8221;Global Genes needed a redesigned platform that would:&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_line_height=&#8221;1.2em&#8221; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Make critical information easier to find and understand<\/li>\n<li>Help users connect with peers and events relevant to their conditions<\/li>\n<li>Empower researchers with streamlined access to shared data<\/li>\n<li>Scale globally while remaining inclusive and compliant<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_heading title=&#8221;Data DIY training model needed&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_line_height=&#8221;1.2em&#8221; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; 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_builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_line_height=&#8221;1.5em&#8221; text_orientation=&#8221;center&#8221; module_alignment=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;]High<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_6&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; 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_builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_line_height=&#8221;1.5em&#8221; text_orientation=&#8221;center&#8221; module_alignment=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;]Medium<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_6&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_line_height=&#8221;1.5em&#8221; text_orientation=&#8221;center&#8221; module_alignment=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;]\u21d3 Low<br \/>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; custom_margin=&#8221;18px|auto||auto||&#8221; custom_padding=&#8221;3px||5px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;High Priority&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_line_height=&#8221;1.5em&#8221; global_colors_info=&#8221;{}&#8221;]<strong>ML-Powered Recommendations<\/strong><br \/>\nHelps users discover relevant events and resources via behavioral + profile data.<br \/>\n\u2192 High impact, medium feasibility, high alignment<\/p>\n<p><strong>Redesigned Information Architecture<\/strong><br \/>\nImproves wayfinding and access to toolkits, events, and condition-specific content.<br \/>\n\u2192 High impact, high feasibility, core to user success<\/p>\n<p><strong>Data DIY Training Integration<\/strong><br \/>\nEmpowers users to understand and steward health data through 4-module series.<br \/>\n\u2192 High strategic value, medium urgency, unique differentiator<\/p>\n<p><strong>Rare Data Exchange Access<\/strong><br \/>\nEnables researchers to explore patient-contributed condition data.<br \/>\n\u2192 Medium urgency, high innovation, high impact on research partners<\/p>\n<p><strong>Plain Language + Accessibility Rewrite<\/strong><br \/>\nDelivers readable, emotionally attuned content for low-literacy and global users.<br \/>\n\u2192 High impact, broad reach, foundational to UX<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Medium Priority&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_line_height=&#8221;1.5em&#8221; global_colors_info=&#8221;{}&#8221;]<strong>Mobile-First Donation System<\/strong><br \/>\nStreamlines giving and improves conversion on mobile devices.<br \/>\n\u2192 Good impact, low complexity, medium strategic importance<\/p>\n<p><strong>SEO + Email Growth Optimization<\/strong><br \/>\nBoosts reach and subscriber engagement.<br \/>\n\u2192 Medium impact, high feasibility<\/p>\n<p><strong>Backend CMS + Staff Training<\/strong><br \/>\nGives Global Genes autonomy over content management and maintenance.<br \/>\n\u2192 Operational value, medium complexity<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;Low Priority&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_line_height=&#8221;1.5em&#8221; global_colors_info=&#8221;{}&#8221;]<strong>Social Media Messaging Alignment<\/strong><br \/>\nRefreshes tone and content consistency across Instagram, Facebook, etc.<br \/>\n\u2192 Nice to have, low urgency, can be phased post-launch<br \/>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;23px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Heuristics Evaluation&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_accordion _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_accordion_item title=&#8221;Scattered and untagged resources&#8221; open=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]After evaluating the site structure, we found the architecture was making it hard for users to find relevant toolkits, events, or financial support<br \/>\n[\/et_pb_accordion_item][et_pb_accordion_item title=&#8221;Lack of personalization or filtering&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221; open=&#8221;off&#8221;]preventing patients and caregivers from discovering condition-specific content<br \/>\n[\/et_pb_accordion_item][et_pb_accordion_item title=&#8221;Outdated tech and UX patterns&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221; open=&#8221;off&#8221;]limiting the site\u2019s ability to scale globally or serve a broad spectrum of users\u2014from researchers to newly diagnosed individuals<br \/>\n[\/et_pb_accordion_item][et_pb_accordion_item title=&#8221;No clear data infrastructure&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221; open=&#8221;off&#8221;]creating barriers to updating critical disease-specific information and surfacing new opportunities for engagement<br \/>\n[\/et_pb_accordion_item][\/et_pb_accordion][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Before&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/06\/Screenshot-2025-06-29-at-1.45.14\u202fPM.png&#8221; title_text=&#8221;Screenshot 2025-06-29 at 1.45.14\u202fPM&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;After&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/06\/Screenshot-2025-06-29-at-1.55.39\u202fPM.png&#8221; title_text=&#8221;Screenshot 2025-06-29 at 1.55.39\u202fPM&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Visual Design &#038; Content Experience&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/06\/Screenshot-2025-06-29-at-2.04.43\u202fPM.png&#8221; title_text=&#8221;Screenshot 2025-06-29 at 2.04.43\u202fPM&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_heading title=&#8221;Responsive, Modern Design&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||3px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]The redesigned interface delivers a clean, flexible layout across devices\u2014built with accessibility, clarity, and emotional sensitivity in mind. Visual hierarchy and white space were carefully balanced to reduce cognitive load for users in high-stress search moments.<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Consistent Call-to-Action Strategy&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||3px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Clear CTAs were placed across resource listings, toolkit pages, and registration flows to support task completion and guide user behavior without friction.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;Real People, Real Stories&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||3px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Replaced generic stock photography with authentic images of Global Genes community members to build trust and connection. The imagery reinforces the idea that this is a space built <em data-start=\"1045\" data-end=\"1059\">for and with<\/em> the rare disease community.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;Emotionally Intelligent Messaging&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||3px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Content was rewritten in plain language, using a compassionate tone that resonates with patients and caregivers. Headlines, labels, and CTAs were tested for clarity and emotional impact.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;Accessible Information Architecture&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||3px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]Navigation was completely restructured to reflect real-world behavior: finding resources by disease type, need (financial, research, events), or role (patient, parent, researcher). Search and filter options were refined to increase relevance.<br \/>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;rgba(88,128,232,0.13)&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; custom_padding_tablet=&#8221;0px||||false|false&#8221; custom_padding_phone=&#8221;0px||||false|false&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Feature Highlight&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||-1px|15px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_heading title=&#8221;Data DIY Training&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_font_size=&#8221;44px&#8221; custom_margin=&#8221;|||15px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/07\/gg_dataCapture.png&#8221; title_text=&#8221;gg_dataCapture&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;57%&#8221; module_alignment=&#8221;left&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;0px|||19px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_heading title=&#8221;The Ask&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||-1px|15px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||15px|false|false&#8221; global_colors_info=&#8221;{}&#8221;]Global Genes launched its <strong data-start=\"459\" data-end=\"486\">Data DIY training model<\/strong>\u2014a four-part series designed to empower patients, caregivers, and advocates to become confident data stewards.<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Challenge&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||3px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||15px|false|false&#8221; global_colors_info=&#8221;{}&#8221;]<strong data-start=\"600\" data-end=\"625\">Our design challenge:<\/strong> Bring these high-impact, often technical tools to the forefront of the site\u2014making them feel relevant, digestible, and inspiring to non-technical users.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;To support this, we:&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; custom_margin=&#8221;||3px|||&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Designed a modular content experience that guides users through each progressive training<\/li>\n<li>Used inclusive, plain-language content design to reduce intimidation around technical data concepts<\/li>\n<li>Positioned Data DIY as a core pillar of the homepage and navigation, signaling its priority to the organization and its community<\/li>\n<li>Created space for storytelling and video, allowing real-world patient advocates to share their data empowerment journey<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>CHALLENGE<\/h2>\n<p>Global Genes\u2014a leading nonprofit supporting the rare disease community\u2014had a sprawling website filled with vital resources, but the user experience was disjointed. Content was difficult to find, resources were scattered, and outdated technology limited accessibility and real-time data updates. Despite their strong mission, the digital platform wasn\u2019t effectively serving the needs of patients, caregivers, or advocates navigating complex health journeys.<\/p>\n<h3>GOALS<\/h3>\n<ul>\n<li>Redesign the website to deliver a seamless, accessible, and empowering experience for diverse audiences.<\/li>\n<li>Unify messaging, tone, and visual identity across all digital touchpoints.<\/li>\n<li>Build a modern, scalable technology stack to support future growth and content maintenance.<\/li>\n<li>Connect users with the right resources at the right time through personalized and intuitive UX.<\/li>\n<li>Strengthen engagement through improved SEO, social reach, and email conversion.<\/li>\n<\/ul>\n<p>&nbsp;<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<span style=\"color: #333333; font-size: 22px; font-weight: 600;\">ROLE<\/span><\/p>\n<p>As UX and UI Lead, I directed a human-centered design process across research, strategy, design, and implementation. I partnered with stakeholders, product managers, and developers to:<\/p>\n<ul>\n<li>Conduct a full audit of content, architecture, and analytics.<\/li>\n<li>Lead stakeholder interviews and persona development to align the experience with community needs.<\/li>\n<li>Design an intuitive, responsive UI with a modular system for disease and resource exploration.<\/li>\n<li>Architect a tech stack that integrates real-time data and simplifies backend workflows.<\/li>\n<li>Create messaging frameworks and channel strategies for social, email, and events.<\/li>\n<li>Oversee implementation and train internal teams for long-term site management.<\/li>\n<\/ul>\n<p><strong>The end result:<\/strong> a cohesive, accessible digital platform that significantly improved user engagement, resource discovery, and brand reach\u2014furthering Global Genes\u2019 mission to serve 400 million people affected by rare disease worldwide.<br \/>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Technology, Analytics &#038; UX Audit&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9bc261bb-9cfb-4498-aef2-9a26350bb38d&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_letter_spacing=&#8221;-0.01em&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9d8f9089-502b-4a82-93f7-6d30803c9a71&#8243; text_font=&#8221;Jost||||||||&#8221; text_font_size=&#8221;16px&#8221; text_line_height=&#8221;1.8em&#8221; header_font=&#8221;Jost|500|||||||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]As the lead UX and UI designer for the Global Genes website transformation, I championed a design-led approach to solve complex usability challenges and elevate the organization\u2019s digital impact. The project aimed to unify fragmented resources into a cohesive, accessible experience that could better serve the rare disease community.<\/p>\n<p>From the outset, I partnered with stakeholders and a cross-functional team to define a strategic vision grounded in empathy, functionality, and clarity. We began with comprehensive research\u2014including UX audits, stakeholder interviews, and user behavior analysis\u2014to uncover pain points around navigation, accessibility, and discoverability.<\/p>\n<p>These insights fueled the design direction. I developed a new information architecture and modular design system that prioritized user autonomy, allowing visitors to self-identify their needs and dive deeper into content pathways at their own pace. Accessibility best practices were embedded throughout, ensuring the platform met the diverse needs of its global audience.<\/p>\n<p>Beyond UX and interface design, I played a central role in aligning the website\u2019s technical and marketing ecosystems. Working with SEO strategists, I supported the development of a content and keyword strategy that elevated organic visibility while reinforcing Global Genes\u2019 thought leadership. I also collaborated with developers to integrate third-party tools, streamline backend systems, and ensure long-term scalability.<\/p>\n<p>The outcome was more than a website redesign\u2014it was a reimagining of the user experience through the lens of design thinking. The new Global Genes platform is intuitive, responsive, and future-ready\u2014delivering clarity, connection, and confidence to a community that depends on timely, trustworthy information.<br \/>\n[\/et_pb_text][et_pb_heading title=&#8221;Tools Used&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;bb4380ae-3a25-47ac-ad90-70eb46aa84ed&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_text_color=&#8221;#43009b&#8221; custom_margin=&#8221;||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9d8f9089-502b-4a82-93f7-6d30803c9a71&#8243; text_font=&#8221;Jost||||||||&#8221; text_font_size=&#8221;17px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Figma, Miro, Adobe Creative Suite, Google Analytics, Hotjar, Amplitude, FullStory<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;My Role \/ Deliverables&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;bb4380ae-3a25-47ac-ad90-70eb46aa84ed&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_text_color=&#8221;#43009b&#8221; custom_margin=&#8221;||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9d8f9089-502b-4a82-93f7-6d30803c9a71&#8243; text_font=&#8221;Jost||||||||&#8221; text_font_size=&#8221;16px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]As the UX Lead for the Global Genes website transformation, I directed a research-driven design process to rebuild the digital experience around user needs, accessibility, and strategic content delivery. My focus was to unify scattered resources into a coherent, engaging, and scalable platform that empowers the rare disease community to find the support and information they need.<\/p>\n<p><strong>Deliverables included:<\/strong><\/p>\n<p><strong>Revised Sitemap<\/strong><br \/>\nInformed by stakeholder workshops and user research, I restructured the sitemap to improve resource discoverability, streamline navigation, and simplify entry points for multiple audience types.<\/p>\n<p><strong>Core Page Wireframes<\/strong><br \/>\nDeveloped both low- and high-fidelity wireframes for key user pathways\u2014including resource libraries, community engagement hubs, and condition-specific content pages\u2014to ensure clarity and consistency across the user journey.<\/p>\n<p><strong>User Journey Mapping<\/strong><br \/>\nCreated a detailed journey map capturing behavioral patterns, decision-making touchpoints, and emotional states of users\u2014from initial visit through to content exploration and resource conversion.<\/p>\n<p><strong>CMS Platform Recommendation<\/strong><br \/>\nConducted a platform assessment and confirmed WordPress as the ideal CMS, based on Global Genes&#8217; editorial workflows, ease of content management, accessibility features, and scalability for future growth.<\/p>\n<p><strong>Technology &amp; Systems Integration Plan<\/strong><br \/>\nOutlined how the redesigned website would interface with Global Genes\u2019 existing ecosystem, including marketing tools, donor platforms, CRM systems, and third-party plugins\u2014ensuring smooth cross-platform functionality.<\/p>\n<p><strong>Measurement &amp; Performance Framework<\/strong><br \/>\nDefined key performance indicators (KPIs) for traffic, engagement, accessibility compliance, SEO impact, and user satisfaction\u2014establishing a baseline for ongoing optimization and impact measurement.<br \/>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Tools Used&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;bb4380ae-3a25-47ac-ad90-70eb46aa84ed&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_text_color=&#8221;#43009b&#8221; custom_margin=&#8221;||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_heading title=&#8221;UX Audit &#038; Insights&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9bc261bb-9cfb-4498-aef2-9a26350bb38d&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_letter_spacing=&#8221;-0.03em&#8221; custom_margin=&#8221;0px||||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9d8f9089-502b-4a82-93f7-6d30803c9a71&#8243; text_font=&#8221;Jost||||||||&#8221; text_font_size=&#8221;16px&#8221; text_line_height=&#8221;1.8em&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"\" data-start=\"254\" data-end=\"594\">As UX and UI lead for the Global Genes website transformation, I worked closely with stakeholders and cross-disciplinary partners to reimagine how the organization connects with its global rare disease community. My role focused on crafting a strategy-led, user-first experience that addressed both organizational goals and community needs.<\/p>\n<p class=\"\" data-start=\"596\" data-end=\"938\">We began with an in-depth audit of the existing digital presence\u2014reviewing content architecture, usability challenges, SEO performance, and technical constraints. Through stakeholder workshops, user research, and persona mapping, we uncovered critical gaps in how patients, families, and researchers navigated the site and accessed resources.<\/p>\n<p class=\"\" data-start=\"940\" data-end=\"1380\">From these insights, I led the design of an intuitive and accessible user interface that simplified search and discovery. We created a clean, responsive layout and improved content hierarchy to ensure users could find relevant disease-specific resources with ease. Simultaneously, we architected a new technology stack that aggregated real-time data from various sources\u2014ensuring that disease information remained up to date and actionable.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; type=&#8221;1_2&#8243;][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/04\/persona-scaled.jpg&#8221; title_text=&#8221;persona&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/04\/gene_journey.png&#8221; title_text=&#8221;gene_journey&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Tools Used&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;bb4380ae-3a25-47ac-ad90-70eb46aa84ed&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_text_color=&#8221;#43009b&#8221; custom_margin=&#8221;||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_heading title=&#8221;UX Audit &#038; Insights&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9bc261bb-9cfb-4498-aef2-9a26350bb38d&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_letter_spacing=&#8221;-0.03em&#8221; custom_margin=&#8221;0px||-32px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][\/et_pb_column][et_pb_column _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; type=&#8221;1_2&#8243;][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"\" data-start=\"1382\" data-end=\"1678\">Our team also created a comprehensive content and communication strategy, including messaging guidelines, tone of voice aligned with patient perspectives, and a multi-channel outreach plan across social, email, and events. This helped unify the Global Genes brand voice while extending its reach.<\/p>\n<p class=\"\" data-start=\"1680\" data-end=\"1894\">To support scalability and sustainability, we built a powerful yet manageable backend system, trained internal teams to maintain the platform, and developed a flexible CMS framework tailored to editorial workflows.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; type=&#8221;1_2&#8243;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]The result was a redesigned site that dramatically improved user engagement, accessibility, and brand coherence. Post-launch metrics showed significant increases in traffic, social media growth, and email signups\u2014amplifying Global Genes\u2019 mission to provide hope and resources to the 400 million individuals worldwide affected by rare disease.<br \/>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;Lo-Fidelity Wireframes&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9bc261bb-9cfb-4498-aef2-9a26350bb38d&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_text_align=&#8221;center&#8221; title_letter_spacing=&#8221;-0.03em&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.25.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/04\/wireframes_troutman.png&#8221; title_text=&#8221;wireframes_troutman&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_heading title=&#8221;Hi-Fidelity Wireframes&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;9bc261bb-9cfb-4498-aef2-9a26350bb38d&#8221; title_font=&#8221;Jost|600|||||||&#8221; title_text_align=&#8221;center&#8221; title_letter_spacing=&#8221;-0.03em&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_image src=&#8221;https:\/\/davialilly.com\/wp-content\/uploads\/2025\/04\/hi-fidelity_wireframe.png&#8221; title_text=&#8221;hi-fidelity_wireframe&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>lobal Genes, a nonprofit dedicated to individuals and families affected by rare diseases, needed to modernize their digital platform to better serve a global, often underserved, community. The project aimed to improve discovery of events, resources, and connections between users with shared conditions or interests\u2014powered by user-centered design and machine learning Project: Global Genes Website [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":81,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-226","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/davialilly.com\/index.php?rest_route=\/wp\/v2\/pages\/226","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/davialilly.com\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/davialilly.com\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/davialilly.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/davialilly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=226"}],"version-history":[{"count":21,"href":"https:\/\/davialilly.com\/index.php?rest_route=\/wp\/v2\/pages\/226\/revisions"}],"predecessor-version":[{"id":526,"href":"https:\/\/davialilly.com\/index.php?rest_route=\/wp\/v2\/pages\/226\/revisions\/526"}],"up":[{"embeddable":true,"href":"https:\/\/davialilly.com\/index.php?rest_route=\/wp\/v2\/pages\/81"}],"wp:attachment":[{"href":"https:\/\/davialilly.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=226"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}